Committed to seeing a world without paralysis after a spinal cord injury, one research institute opted to improve research by using risk-based de-identification. Spinal cord injuries happen every day, often occurring after a vehicle accident, fall, impact by an object, sports injury or by violence. Over 250,000 Americans suffer from such injuries, with approximately 11,000 new injuries each year. A heavy price is paid in economic loss and personal suffering.
Forming a nationwide registry of spinal cord injury patients, a research institute aggregates and de-identifies the data, and then uses the data to push towards the cure. Data sets are also used to improve and standardize delivery of care internationally, increase development and commercialization of innovations, and generate opportunities for participation in research and smart health decision-making among consumers.